Thursday, November 6, 2014
Inclusion is a state of mind
We recently took Levi roller skating as part of a school function. You could see the excitement in his eyes as he walked through the door. Between the music and the lights and all that was going on, he was ready to take the night by storm. We got him a pair of skates that fit over his shoes and braces. Then we rented him a trainer which is a some PVC pipe in the shape of an L with wheels on the bottom. This gives the kids something to hold on to that rolls while they are skating. With that we hit the floor.
The first few minutes were a little a rough. Levi was throwing all his weight over the top of the trainer which made it top heavy. I had to hold it down to keep him from going over the top. His feet were everywhere as he struggled to keep his balance. Finally we found a rhythm. Levi would hold on to the trainer and lean back. His feet would go forward just under the trainer. He would lock his legs and that kept his feet nice and straight. From there, I was just able to push him around the rink. He was loving it!
This was a major milestone for both of us. Levi has worked so hard and come so far from a physical stand point. He is now able to get himself into a standing position without holding on to anything. He is able to stand unassisted for long periods of time. And of course, he is now walking around the house. He still holds on to things but in most cases, he doesn’t need to. It is just easier for him.
For myself, I have come a long way in my thinking. In the past we have often gone back and forth on whether or not we should include Levi in something. Should we take him to the latest kids movie? Should we sign him up for sports? We always struggled to predict what the outcome will be. Will he sit still in the movie theater for that long? What would he do when we stick him out on the soccer field? How will the other kids treat him? What we have learned is that we are usually completely wrong in our predictions.
One of Levi’s best attributes is his passion for life. Carpe Diem! Levi just wants to enjoy himself and take part in what everyone else is doing. He lives to try new things and that is a really great thing. If you stick him out on that soccer field will he even be able to kick the ball? The answer is, who cares! It is not whether or not he will be able to play soccer, it is about him running around on the field with the other kids. Being part of something. Having fun and trying new things. At the skating rink, Levi didn’t care that he couldn’t skate. He just enjoyed being out there. We really don’t know what he can accomplish until we try. As a parent, I need to do a better job of giving him the benefit of the doubt.
Saturday, February 16, 2013
Happy Birthday Levi!
Last Saturday Levi celebrated his 3rd birthday. These last 3 years have just flown by and we are very proud of what he has accomplished. He continues to get stronger in his legs and can now stand on his own for 5 to 10 seconds at a time. He is also cruising a lot more these days. He has been making great strides in speech therapy as well. The other day he said bubble and hi. We really feel like this is going to be a breakout year for him.
Since Levi is now 3, he is no longer eligible for the Early Steps program and has to enter the school system. This past Wednesday we met with the school for his IEP meeting. Overall it went well. He qualifies for a lot so I feel like we didn’t have to fight for much. Right now I feel like I don’t know what I don’t know so as the year progresses I might have a better feel for what he might be missing. It’s all a learning process and I am very fortunate to have access to some great resources to help me if I have questions. (Thanks Henry!)
On Friday, Levi had his first day of school. It all happened so fast. From the Wednesday IEP meeting to dropping him off on Friday Morning. The physical therapist met Caroline and Levi at the car. They invited her into the classroom to go over a few things about his day to day. It sounded like Levi was intimated at first as they were moving him from place to place trying to get him situated with all the equipment they had brought in for him. Soon after Caroline left and we were left to wonder how he was doing all day. Caroline went back to pick him up at around 3 PM and called me with the report. Levi had a wonderful day! He didn’t eat very well but other than that it appeared that he really enjoyed himself. He colored, ate lunch with his classmates and tried to participate in the conversation the best he could. He even had PE that day. After hiking it out to the PE area and back he was pretty tired and went down for a nap. I am so proud of him. The one thing that Levi has always done well is adapt. Today was no exception.
I was so excited and happy to hear that he did so well in his first day of school. Obviously as parents we were a little nervous but once again he proved to us that he is up to the challenge. Way to go little buddy!
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